Clotting proteins missing or are defective in hemophilia can directly affect the activity of cells responsible for bone ...
Columnist Jennifer Lynne attends the recent One Drop conference, which focused on ultrarare bleeding disorders.
Hank Wolgamott, who has hemophilia A, and his mother, Amanda, live in Texas. They share dramatic questions they've gotten ...
Columnist Joe MacDonald recalls having bronchitis yet having no other choice than to continue his son's factor infusion.
Jared Formalejo, who has hemophilia B, and his wife, Alliah, live in the Philippines. They tell the story of how quick thinking led to using an unorthodox yet effective solution to stop a bleed.
Prophylactic replacement therapy to prevent bleeds was more cost-effective than on-demand treatment of active bleeds for children and adolescents in China with moderate or severe hemophilia A without ...
Elocta was associated with better bleed control and fewer injections for hemophilia A patients in a real-world European study ...
Researchers at the Birjand University of Medical Sciences analyzed the prevalence of SENV and related complications in ...
MacDonald feels anxious while preparing for spinal surgery, but recalls her sons' bravery in the face of hemophilia.
Columnist Alliah Czarielle and her husband, each with challenging conditions, are aware of the benefits of pride and dignity.
Jennifer Lynne, who has hemophilia B, shares a ridiculous comment she gets when people find out she can start her own IVs.