I spent much of my childhood trying to hide my CF. But after an emergency double-lung transplant, the loss of my sister, and years of mental health challenges, I’m proud to belong to a CF community ...
Cystic fibrosis taught me to prepare for the worst, but pregnancy taught me to make room for hope and trust my body alongside medical care. Through my journey to motherhood, I learned that CF doesn’t ...
The Missouri Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
The Utah and Idaho Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...
I've been thinking of my life after Trikafta as a series of pros and cons ... like on “Friends” when Ross made a list to figure out why he should/should not date Rachel. Ross needed to decide if he ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
I’ve survived to the age of 63, searching for air with cystic fibrosis. When I was born in 1963, I looked like a perfect, beautiful 6-pound precious bundle of joy to my two young parents, who were ...
The Cystic Fibrosis Foundation is providing additional funding to Arcturus Therapeutics to develop an inhaled messenger RNA therapy for CF that provides lung cells with the correct instructions to ...
This medicine represents the single greatest therapeutic advancement in the history of CF, offering a treatment for the underlying cause of the disease that could eventually benefit more than 90 ...
Katherine was diagnosed with CF as a baby. She has an older brother and had a younger sister who sadly lost her battle with CF in 2010. Katherine received a lung transplant in 2010 at age 18 and ...