I had an unexpected cystic fibrosis diagnosis at 31 and later learned that both of my children had CFTR-related disorder. What carried us through was individualized care and the unwavering support of ...

I used to measure my life with cystic fibrosis and CF–related diabetes (CFRD) in numbers. Lung function. A1C. Blood sugars. Weight. Enzymes. Appointments. I learned early on that survival meant ...