Huntington's Disease News

Mindfulness and meditation help me cope with Huntington’s disease

Columnist Tanita Allen's mindfulness and meditation practice has taught her that she doesn't need to fight herself every ...
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Gene therapy tied to slower functional decline in Huntington’s at 4 years

Up to four years after a single dose of the experimental gene therapy ifezuntirgene inilparvovec (formerly AMT-130), people with Huntington’s disease who received the high dose showed slower disease ...
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Form of intermittent fasting may help slow Huntington’s, pilot study shows

Time-restricted eating (TRE), a form of intermittent fasting that limits daily calorie intake to a six-to-eight-hour window, may help slow the progression of Huntington’s disease, according to results ...
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How Huntington’s changes the mental filter between a feeling and a response

Years ago, my wife, Jill, was at a party talking with a friend. The conversation turned personal, and her friend asked a difficult question. It was the kind of question people sometimes ask when they ...
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What I wish healthcare workers knew about racial bias and rare disease

Living with Huntington’s disease (HD) has taught me a great deal about healthcare, both the kind that makes you feel supported and the kind that leaves you questioning whether you were truly heard. As ...
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Oral therapy may slow progression in early-stage Huntington’s disease

In final 15-month study data, people with early-stage Huntington’s disease treated with SKY-0515, Skyhawk Therapeutics’ investigational oral therapy, showed improvements in function, movement, and ...
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For families with Huntington’s, every vote in Congress matters

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google My wife, Jill, who is gene-positive with Huntington’s disease (HD ...
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What it’s like when a Huntington’s patient sees decline in their own parent

There are moments when looking at my mother feels like looking into a future I am trying very hard not to fear. My mother lives in a nursing home now. She is unable to walk, wears adult undergarments, ...
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Early myelin protein loss may precede nerve fiber damage in Huntington’s

An early and progressive loss of a protein that helps maintain myelin, or the protective sheath around nerve fibers, may contribute to white matter damage in Huntington’s disease, a study suggests. In ...
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What Huntington’s disease families can take away from the Lindsay Clancy trial

For families affected by Huntington’s disease, some courtroom trials — especially those involving a defendant’s deteriorating mental health — are impossible to watch without feeling the weight of the ...
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Disclosure of my Huntington’s disease is not a confession

There is a particular kind of vulnerability that comes with telling someone you have Huntington’s disease (HD). It can happen in friendship, dating, or any new relationship where you are trying to ...