For those who don’t benefit from modulators, the fight against CF can feel isolating and uncertain. Five members of our community share how they’ve transformed their personal struggles into purpose — ...

Living with cystic fibrosis in Pakistan, I held onto hope that Trikafta would one day reach us. Against all odds, it did — and it completely changed my life.

Coming to terms with the reality of my cystic fibrosis as a child stirred a deep fear that I tried to numb for years through substance misuse. But today, I’m grateful to be on the other side, and am ...

Traveling has been a lifelong passion, and I won’t let cystic fibrosis keep me grounded. Here are my seven rules for traveling with CF.

Throughout my life, I experienced small, unexplained health issues that slowly accumulated. It wasn’t until I endured years of chronic pancreatitis that I finally received a diagnosis at 58 years old: ...

Our family has lived with the constant anxiety of managing cystic fibrosis since our daughter’s birth — which made it all the more devastating when she had to stop taking Trikafta due to its impact on ...

Dear Senator Thune, Senator Schumer, Congressman Johnson, and Congressman Jeffries, The undersigned 43 organizations represent millions of patients and consumers who face serious, acute, and chronic ...

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...

The Cystic Fibrosis Foundation is funding the development of a gene editing therapy that is designed to use ReCode’s tissue-specific delivery vehicle to transport gene editing cargo to the lung cells ...