News

My son was diagnosed with CF in 1965 and bravely defied the odds, living 28 cherished years. Then, decades later, I was stunned to receive a CF diagnosis of my own.
Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...
Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...
Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...
Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...
After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.
Navigating my newborn’s CF diagnosis during the height of the COVID-19 lockdown was one of our hardest moments — yet it was only the beginning of a journey filled with unexpected joy and hope.
Living with cystic fibrosis while facing homelessness has tested me in every way. However, through it all, I’ve found strength, purpose, and the unshakable belief that I must keep going — for myself ...
It’s been years since I’ve attended a Great Strides walk, but this year I decided it was time to introduce my kids to the CF tradition that meant so much to me growing up.
BETHESDA, Md. (May 13, 2025) — As Congress considers deep cuts to Medicaid as part of budget reconciliation, the Cystic Fibrosis Foundation issues the following statement: The CF Foundation expresses ...
A recent hospitalization reminded me that my strength to fight cystic fibrosis is deeply rooted in my Filipino heritage and the unwavering support of my family.