I had an unexpected cystic fibrosis diagnosis at 31 and later learned that both of my children had CFTR-related disorder. What carried us through was individualized care and the unwavering support of ...

I used to measure my life with cystic fibrosis and CF–related diabetes (CFRD) in numbers. Lung function. A1C. Blood sugars. Weight. Enzymes. Appointments. I learned early on that survival meant ...

After years of unexplained symptoms and setbacks, my cystic fibrosis diagnosis became both an answer and a turning point — turning my struggle into resilience and my passion into purpose.

Watching my son struggle without access to his CF medication was heartbreaking. But the hope that came when our community rallied behind us is something I’ll never forget.

I remember the exact moment we realized Trikafta wasn’t the miracle drug we hoped it would be. Our 5-year-old daughter, Olivia, had become inconsolable and withdrawn, and was saying words that no ...

This blog contains content about an eating disorder. If you or someone you know has an eating disorder, contact the National Eating Disorders Association helpline by calling 1-800-931-2237.

This blog discusses self-harm and suicidal ideation. If you or someone you know has thoughts of self-harm or suicide, please contact your physician, go to your local ER, or call/text the National ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

I was 8 years old, standing in our family dining room with my dad, setting the table for my baby sister Jill's 2nd birthday celebration. Always older than my years, I remember so clearly saying to my ...