Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...

Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...

Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...

Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...

After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.

My son was diagnosed with CF in 1965 and bravely defied the odds, living 28 cherished years. Then, decades later, I was stunned to receive a CF diagnosis of my own.

A recent hospitalization reminded me that my strength to fight cystic fibrosis is deeply rooted in my Filipino heritage and the unwavering support of my family.

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS.

I was bullied at school because my cystic fibrosis made me different from my peers. However, my perspective shifted as I got older, and I learned to embrace the unique qualities that make me who I am ...

I always assumed my chronic fatigue would go away after starting Trikafta and getting through the newborn stage with my twins. But, when it didn’t, I realized I needed to rethink my approach to ...

Living in rural Virginia has made it difficult to access the care my son with cystic fibrosis needs, but the support of our community and our upcoming move to more easily access care gives us hope as ...